looking over the edge

Well - yesterday we thought she would be dying on us - but by the end of today with first Sue - twin - arriving here - then the hospice nurse wanting a face to face home visit with her - finally mum and dad turning up tonight....Ali has found the energy to sit up and chat! So we are having a more up-beat prayer meeting tonight - safe in the knowledge that Ali is certainly not about to leave us. What a roller coaster.

Things are not the same. For one thing, Asha sat with her mummy and daddy this afternoon talking about how insects animals and people die - some after only a short lifetime - she at least now can anticipate making special times happen with Ali each time more deliberate than before - deliberate in that she can perhaps show love and tenderness for her mummy in a four year old sort of way...of saying goodbye?

Ali is very sleepy. She can rise to the challenge of conversation - as today proved. But everything is slow and sentences are hard work, so we are being very gentle on her. She also cannot move very much.

Thank you for your messages and loving gestures. We will keep you as up to date as we can.
Chris